Last round!!!

Here we are again for the last time!! So far no fevers, and that means no infections and 6 day stay (instead of 12)! Today went pretty well, for the most part she just slept all day. She did get sick a lot but after piling 3 nausea meds on top of each other and a really long nap she was ready to visit the play center! Didn't spend to much there but it makes me happy that she wanted to go! She took a few sips of water but nothing to eat. Not surprising!
We talked to the nutritionist today about how soon we can take her off Tony and lipids... Every night at home I have to hook her up to her "backpack", which is basically iv fluids/nutrients/fats that accounts for 45% of her daily nutrition. it runs for 12 hours so we sleep with her backpack and wires every night and wake up to the pumps beeping constantly or tangled in the wires. She usually has to get up a few tines to pee every night as well. And then in the morning when they are finished, we can't just unhook them and be done.. Gotta clean the hubs then flush the lines with saline and heparin.... such an ordeal, I CAN NOT wait to be done with it! So the nutritionist feels we can lower the percentage as soon as we leave, especially with the lipids and probably take her off it completely in about 2 weeks!!! Praise the lord!! She has started eating again around that time with the past 3 cycles so once she does we're done! Of course, she'll monitored closely so if she doesn't look good from a nutrional standpoint she can always be put back on. But once she starts eating she usually eats like a little piggie! I have to make her plates of spaghetti and mac and cheese or make runs to mcdonalds or tao bell five hundred times a day. I can't wait for her to have a normal appetite again. She can't eat food that has sat out at all or any left overs and she wants food but only takes a few bites then is done... So we have to throw it away! I can't make a big ol thing of spaghetti then reheat over the following days. Everything has to be fresh! Even the sauce, I have thrown away jars of spaghetti sauce, I at least have starting buying the little jars of sauce but still go through about 3-4 a day. Oh and single Mac and cheeses. I swear I've gained so much weight eating all her leftovers. She makes the strangest requests then takes a bite and is done! Needless to say, anything concerning her nutrition or appetite has kinda been a pain BUT we're soooooo close! :) making food for her a million times a day doesn't really bother me but I will be happy to not too...
We have 2 days of inpatient chemo left! Today was her last dose of the horrible cisplatin that s damaging her hearing. :( although it can linger and cause damage for up to a whole year... I feel so much relief that it's the last time she will ever have to take it! Cisplatin is nasty stuff, as are all the chemo drugs, but I have a personal vendetta against this one. I'm so angry that it has caused her to lose hearing, at the last test the damage had spread to normal ranges. Anything under 8k is normal ranges. She has significant damage at 8k,6k,4k and 2k. :( as of right I haven't noticed any changes in daily conversation so that is a little relieving. I am praying and praying the damage stops and she won't need hearing aids. With god all things are possible! But a healthy baby with hearing aids is much better than the alternative. It is just a horrible feeling to know what she has to sacrifice so that we could save her life. Hearing loss doesn't always happen but it can, so they aren't surprised. But come on, she is already 1 in 30 cases in the world of the damn disease on it's own, why does she also have to be the one that has the hearing loss. Grrrrr! Not that I would ever wish any of this on anyone else, I'm just saying... Watching the last few drops of that crap finish up was an amazing feeling. Knowing I never have to give her amifostine again also makes me very happy! It makes her so sick :( never again!! The cytoxan she has the next 2 days makes her pretty sick, but she usually does better on those days. After this she only has one dose of vincristin in clinic, it's not so bad, and then she will officially be finished with treatments! Brain surgery, radiation to her entire brain and spine, and finally high dose chemotherapy with stem cell rescue...done!!! 8 months we've spent away from home and torturing my baby and we are now so close to being finished! I can not wait to go home! As of today she has spent 48 nights in a hospital and pretty much every day of the past 7 months(minus the 6 week break and a few lucky days that her counts were great) in clinic. Sooo close!:) :) She has done so amazing through this whole thing, I'm so proud of her! She is soo excited to go home as well,she keeps talking about going back to Austin, seeing Drake and Sasha, riding the zilker train and even talked about going back to school!! I'm not sure how long it will take for things to get back to "normal" but I can not wait to start!!:)
Will write more later!