Round 3

We came in to start round 3 on wed 11/9 only to find out Hayden had another infection :( while we were waiting for our room, Hayden spiked a fever so they did blood cultures. They came back positive, so they decided to hold off on chemo until we knew what it was and got it resolved. Thankfully the bacteria responded to antibiotics immediately and Thursday's culture came back negative as did today's! So we are on day 2 of negative cultures, they don't consider it resolved until 3 negatives. She has to recieve 10 days of antibiotics after the bacteria is cleared. So even though she's been getting antibiotics for 3 days it only counts as day 2 of the 10 days. But it works out nicely because the chemo and antibiotic days overlap, so it's not nearly as bad as last time. I think it will go much faster this time! Last time we had already been at the hospital for a few days and they added the 10 extra to the end, it was long!
We're going to celebrate monkeys bday tomorrow with my family at the hospital. We were going to wait til next weekend but with everything going on she probably won't feel too good then so we'll just bring the party here! Since we haven't started chemo yet she's feeling good, just spending her time in the play room and playing games! She's in great spirits and being her normal happy self! I'm gonna run out tonight and get decorations and balloons for tomorrow! I think she'll like that!
It's crazy that we are already on our 3rd round! We're almost done! We're praying this round is better than the last and I think it will be. We have her scheduled to receive 2 nausea meds alternating around the clock. This cocktail worked really well the first time and has worked well for some of our friends also. There is a little boy that had a horrible second round very similar to Hayden's but his 3rd was much better and 4th even better than the last!! We're hoping to follow that trend! Since the fever already broke and she's feeling good, infection is under control, and the drugs are scheduled around the clock, I really think this round will be much smoother than the last! Knowing we're getting so close to completion helps a little too :) like usual we're just focusing on staying positive and taking it one day at a time.
Please continue to pray for Hayden! Your prayers definitely help! Please pray this round goes smoothy and her nausea is controlled and she feels good. Pray that the chemo doesn't damage her hearing anymore than it has. Right now there is damage only to high pitch ranges that doesnt effect her normal range hearing and we really would love it to stay that way! Pray that she has no harmful side effects from all these treatments, especially no secondary cancers! Pray that she is free from her AT/RT cancer and it never comes back! She's schedued for her next MRI and lumbar puncture towards the end of Dec, I know that seems far away but keep them in your mind and pray for clear scans and negative punctures!! Thank you all for your continued prayers and support! We know they work because we see the results everyday!
We have two friends, Jaxon and Carli, who just finished their last rounds of chemo! We're so excited for them and their families!! Pray that their bodies recover quickly from the last round and they live long happy healthy cancer free lives! :) Our friend Nicole just finished her radiation and is headed home for a few weeks before starting chemo! Pray that they enjoy a nice break and chemo goes smoothly for them! Our friend Jaylie is in her 4th of 6 rounds of chemo and is doing great, pray that she continues to do so!
I try not to think about why this is happening to often but when I do I try to focus on the positives. This experience has definitely brought me closer to god and brought our families and friends together in such amazing ways! When I read updates about the benefit in Buffalo I'm just blown away by how everyone has come together for our baby! It's so special to us and we are so thankful to each and every person who has contributed items, times and prayers for Hayden and us! It has also opened my eyes to how large the world of childhood cancers is and how much more time, money, and research need to put into finding cures! I will definitely focus time and energy in the future to try to make this happen! And not that I didn't know before but I'm reminded everyday how special my baby is and how much I love her and how thankful I am to have her in my life!!
God Bless!!