Tuesday, September 13, 2011

Chemo day 3

Its day 3 at the hospital, day 2 of chemo. Yesterday was a little rough, she got sick about 4 times and had diarrhea all day :( I wasn't expecting her to be sick the first day. The good thing was that it came and went really fast. She wasn't nauseous the whole time. It would just come over her really fast, she would be sick a few times then it would pass. I don't think her belly was feeling amazing the whole time but I don't the room was spinning either. Honestly the diarrhea probably felt kinda good since she's been backed up for months. (that might be tmi but this is as much a record for me as it is for y'all) She didn't eat or drink anything yesterday after the chemo stared but before she ate mashed potatoes, a piece of bread, French fries and a bun from a mcdonalds cheeseburger. I think her body was storing some energy. Yesterday there was a lot going on. She had one drug run over 6 hours(cisplatinum~ makes her feel yucky), one that ran through iv in a bag that they just hold up, probably took about 5 min, was the first one to go in (vincristine~ no immediate side effects) and another that is actually a protectant but with nasty side effects that she to do twice (amifostine~ immediately drops blood pressure, makes her super nauseous & sick,she also hates it bc she has to lay flat for twenty min while it goes in...the effects are immediate and last the whole time and about 30 min after. Blood pressure, however, goes up in about 5-10 min. Well it did both times yesterday, they are ready if it doesn't..) chemo started at 2 and was over at eight. Her line still isn't working properly... Oh I guess I forgot to mention that...they had to put in some kind of med that dissolves clots cause they think there is some kind of flap over the line..the med didn't work but if she lays on her right side with her left arm over her head, elbow bent blood flows great. It doesn't seem like a big deal but they draw labs every 2 hrs around the clock..pain in the butt. (It seems to be working much better today however.) Also, her favorite little kitten got mixed up with linen... She's been asking for her all day:/ they called down to laundry to see if they could find her..no luck yet. She slept really good last night and woke up feeling this morning! She didn't feel like eating or drinking until later this evening but was playing and doing good for most of the day. The drug she got today(remember we were told really makes you sick) cytoxin or cyclophosphamide ran in over an hour. I didn't want a repeat of yesterday and since it was pretty For sure it was going to make her sick I had them give her phenegrin(anti nausea that knocks you out cold) about thirty min before they started the chemo. She slept through it then for an extra 30 min. She woke up got sick, got more anti nausea meds and as been good ever since. :) BUT they changed her dressing for her line and some stupid idiot put something on her skin after I said repeatedly not to do anything extra, just betadine and the dressing. They never listen. So she started having an allergic reaction to whatever it was..oh but it's just a skin protectant blah blah blah, I'm like I don't care what it is, if I say don't use it,then don't use it! So i changed the dressing since they obviously are incapable of such a task, and they gave her benedryl..Im praying this takes care of it. These rashes get crazy out of control and are so miserable for her :( with everything that's happening we don't need a freaking crazy rash that itches so bad she can't even sleep!! Ah, are you kidding me!!! Anyways, she ate m&ms, a chicken nugget, 6 gold fish, doritos, French fries and has been drinking sweet tea this evening!! So awesome!! Today was good! She still has energy and I'm glad she's eating. We're all doing really good keeping smiles on our faces and being strong for Hayden, I'm proud of us. I wanted to flip out about the rash...but I didn't..i left the unit and called my mom screamed & cursed then came back like nothing was wrong. It doesn't seem like a big deal in the grand scem of things but it's just something that we shouldn't have to deal with, it's completely avoidable and rashes are terrible. (apparently I'm not over it yet)
Blood work as been good so far, one dip in calcium but that's expected and was fixed as soon as it happened. It's funny how her blood counts are "good" they've been waaaay lower than they should be for the past few months bu not low enough for transfusions so that's good. They will be though and when that happens please don't get offended if I harrass you about your health, breathing on or around her and have you use Sanitizer in front of my eyes, and possibly not let you touch her.. Haha I'm kidding! Sort of.. :)
Tomorrow is cytoxin again. The second day of it, for obvious reasons, should be a little tougher but hopefully we can pull another day like today!! Keep the prayers coming!!
Go Team Hayden!!! Rrrraawwwwrrrrrr!!!!!

1 comment:

  1. Praying for y'all, hope today is a little better. You are so strong! It's the hardest thing pretending like everything is ok in front of them. You have a great attitude. Praying she feels good today!

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