Wow, we finished the first round of chemo! Home for three days now, things have been great so far. Blood work today was good! Dropping but slowly, no transfusions yet. It's not supposed to drop completely until around day 7. She is still on tpn (the supplement) until she starts eating normally again. Today was the first day that she actually ate pretty good...a whole hotdog minus the bun and a whole can of spaghettio's minus the meatballs. She's been drinking good, lots of water and orange juice. I'm also still doing the gcsf (drug to help bring back white blood cells). We go back Thursday for blood work and another dose of vincristine.
Hayden is doing really well, lots of energy still. :) she has to take lots of medicines now, she normally does pretty good with her meds but she hates hates one of them and screams and freaks out when it's time to take it. I'm talking freaks out, I feel like she's going to make herself sick from screaming so much, it's a bit dramatic. It's really not thaaat bad, honestly I think the colace is much worse (that might be bc it tastes like yager..I guess Hayden hasn't drank enough yager to realize how gross that flavor is... one day :P) This evening I mixed it with chocolate syrup and it seemed to help...we shall see, wish me luck!
We ran into our friend today from Austin that also has atrt, Nicole!! She is doing great! It makes me so happy to see her up and feeling good! It's amazing how much difference just a few weeks make!<~especially when part of that time is spent at home! She will start proton this week and will follow the same treatment plan as Hayden (we have all the same dr's..even the ones in Austin!) Please don't forget to keep all of our friends in your prayers while your praying for monkey! Nicole, Carlie(who btw is doing really good as well, finished her first rounds too, Jaylie (finished round two and doing good!) and Jaxon (finished round two, also doing good!). There are many more but these are the ones we see the most and know by name.
Started decorating the house for Halloween!!! Hayden says she wants to be a dinosaur for Halloween this year! I love this time of year! :)